What about my wife's plans? Plans to continue to teach, to be with her daughter, to travel and to create more books with me. Plans for all the moments big, small, and ordinary. Plans to love and be loved. Plans to live a full life.
You are telling me that my beautiful and sweet wife was singled out in all the vastness that is the universe so she could suffer and die in my arms from a horrible disease like cancer because the “universe has plans?”
If that is the case, the universe is a dark place indeed.
Hearts and brains -- in the game of life it takes both of them to make humans, well, human. Unfortunately, I have found along my path in life that there are people who, sadly, either lost a few cards along the way, or were never given a full deck to play with.
In January, a Breast Cancer Gene Screening bill I initiated -- HB 2529 – was introduced into the Arizona House. Basically, it would obligate primary care doctors to properly screen for familial BRCA mutations and recommend genetic counseling if appropriate and it would be covered by insurers. If passed, it should save many lives. It would also save on the enormous expensive of cancer treatment paid by the patient and the insurance companies for a cancer that was not prevented or caught early. It is based on a law passed in Nevada in 2021 (SB 251).
I initiated the bill in my wife Donna’s honor because she died a horrible and needless death from hereditary cancer. Had this bill been in place, I would not be a widower. It would have made her relative's incomprehensible failure to speak up about a germline BRCA2 mutation a non-issue. Proper screening years ago, genetic testing, and prophylactic surgery would have reduced Donna's cancer risk by 95%.
I sincerely hope support for this bill will grow and it will pass and prevent many, many others from suffering Donna's fate.
UPDATE: This bill died in committee. Since the bill was introduced and sponsored by one political party the other political party just ignored it. Sad and frustrating.
Text of the bill:
Currently it is pending in the House Health and Human Services Committee. Hopefully it will move along soon. Progress report: https://legiscan.com/AZ/bill/HB2529/2022
If you live in Arizona, please contact your state representative and urge their support. Thank you!
Legislative Members Roster: https://www.azleg.gov/MemberRoster/
(This is based on post from my site BRCA2wise.com)
I hate this "journey" I'm on. I should be drawing silly cartoons, painting landscapes, or just sculpting something for the sake of it. But here I am again, in a dark place. Something brought back a flashback of one the numerous times I rushed my wife to the ER because of some complication due to her cancer and/or cancer treatment. Being a cancer
caregiver was hell. Watching my wife suffer and die in my arms from a horrible, but
preventable cancer was/is total hell.