Resources for Talking to your Family about Hereditary Cancer

Nobody should suffer and die of a preventable cancer. Nobody. 

Please share these links with anybody who might have a family history of cancer.

Talking openly about health history with your family is important. Documenting that information, especially if there is a family history of cancer, can be life-saving.

Click here to download a family health/cancer history pedigree PDF

Click on the image to go to download page.

Click on the image to go to download page.

Sharing Medical Information with Relatives
If possible, the following family medical information should be collected and shared with close relatives:

    -- family members who were diagnosed with cancer
    -- age at diagnosis
    -- type of cancer, including pathology results, if available

    -- genetic test results

Talking to Your Family About Your BRCA1 or BRCA2 Mutation
Learn how to share test results, letters from your doctor or genetic counselor, or other information you received about your mutation with your family. Giving family members information about your specific genetic mutation helps their healthcare providers know exactly which test to use.


Talking to Your Family about Your Lynch Syndrome Diagnosis

Why talk to my family?

Your family members can benefit from knowing about your diagnosis of Lynch syndrome.  Talk to your family members about Lynch syndrome, and tell them Lynch syndrome is passed through families... Read more...

How to Share Genetic Test Results With Family
When you share genetic test results about hereditary cancers, your family members need to know at least these 2 important details to share with their health care providers or genetic counselors:

    -- The name of the specific gene where the mutation was found, like BRCA2
   -- The specific mutation in the gene, like 187delAG in BRCA1

All in the Family: The Importance of Talking About Hereditary Cancer
The key is communicating information with not just your daughter or son, but also extended family such as an aunt, uncle, niece, nephew or grandchild, according to Megan Myers, M.S., a genetic counselor from the University of California San Francisco (UCSF).


Resources with videos:


Encouraging Family Conversations About Hereditary Breast and Ovarian Cancer - YouTube Video Project

Bring Your Brave: Talking About Your Family History of Cancer
Facing Our Risk of Cancer Empowered or FORCE.
FORCE's mission is to improve the lives of individuals and families facing hereditary cancer.

 My Faulty Gene
My Faulty Gene is a nonprofit organization which provides information and assistance to underserved, uninsured, and underinsured individuals whose family medical history suggests genetic testing might be helpful in identifying an increased risk of disease due to a genetic mutation.  We believe that everyone in need of germline genetic testing should have access, including family members of individuals with a known mutation.

Helping families by providing free education, support and help finding early detection and genetics services.

BRCA Exchange Web Portal

The BRCA Exchange aims to advance our understanding of the genetic basis of breast, ovarian, pancreatic and other cancers by pooling data on BRCA1/2 genetic variants and corresponding clinical data from around the world. Search for BRCA1 or BRCA2 variants above.