Nobody should suffer and die of a preventable cancer. Nobody.
Please share these links with anybody who might have a family history of cancer.
As part of my hereditary cancer awareness and prevention advocacy, I have created a site where a you can download a free Family Health/Cancer History Pedigree I created so you can get the conversation started.
Sharing Medical Information with Relatives
If possible, the following family medical information should be collected and shared with close relatives:
-- family members who were diagnosed with cancer
-- age at diagnosis
-- type of cancer, including pathology results, if available
-- genetic test results
Read more...
Talking
to Your Family About Your BRCA1 or BRCA2 Mutation
Learn
how to share test results, letters from your doctor or genetic
counselor, or other information you received about your mutation with
your family. Giving family members information about your specific
genetic mutation helps their healthcare providers know exactly which
test to use.
Read more...
Talking to Your Family about Your Lynch Syndrome Diagnosis
Why talk to my family?
Your family members can benefit from knowing about your diagnosis of Lynch syndrome. Talk to your family members about Lynch syndrome, and tell them Lynch syndrome is passed through families... Read more...
How to Share Genetic Test Results With Family
When
you share genetic test results about hereditary cancers, your family
members need to know at least these 2 important details to share with
their health care providers or genetic counselors:
-- The name of the specific gene where the mutation was found, like BRCA2
-- The specific mutation in the gene, like 187delAG in BRCA1
Read more...
All
in the Family: The Importance of Talking About Hereditary Cancer
The
key is communicating information with not just your daughter or son,
but also extended family such as an aunt, uncle, niece, nephew or
grandchild, according to Megan Myers, M.S., a genetic counselor from the
University of California San Francisco (UCSF).
Read more...
Resources with videos:
Bring Your Brave: Talking About Your Family History of Cancer
Hereditary
Breast and Ovarian Cancer Syndrome
Hereditary
breast and ovarian cancer syndrome is an inherited
cancer-predisposition syndrome. Affected individuals have a
significantly greater risk of developing certain cancers, particularly
breast cancer, in both men and women, and ovarian cancer in women. Many affected individuals tend to develop cancer earlier in life as well, usually before the age of 50.
Short Hereditary Cancer Syndrome Video
FacingOurRisk.org
Facing Our Risk of Cancer Empowered or FORCE.
FORCE's mission is to improve the lives of individuals and families facing hereditary cancer.
My Faulty Gene
My Faulty Gene is a nonprofit organization which provides information and assistance to underserved, uninsured, and underinsured individuals whose family medical history suggests genetic testing might be helpful in identifying an increased risk of disease due to a genetic mutation. We believe that everyone in need of germline genetic testing should have access, including family members of individuals with a known mutation.
Kintalk
Helping families by providing free education, support and help finding early detection and genetics services.
BRCA Exchange Web Portal
The
BRCA Exchange aims to advance our understanding of the genetic basis of
breast, ovarian, pancreatic and other cancers by pooling data on
BRCA1/2 genetic variants and corresponding clinical data from around the
world. Search for BRCA1 or BRCA2 variants above.
Current number of unique BRCA variants in the portal: 68,962
Unique BRCA1 variants in the portal: 34,446
Unique BRCA2 variants in the portal: 34,516
Number of ENIGMA expert-classified variants in the portal: 7,445
Variants expert-classified as pathogenic: 4,900
Variants expert-classified as likely pathogenic: 0
Variants expert-classified as benign: 1,358
Variants expert-classified as likely benign: 1,179
Prevent Cancer Foundation
The mission of the Prevent Cancer Foundation is empowering people to stay ahead of cancer through prevention and early detection.
Other
Cancer Resources
Take a Stand!
Staying
on top of your health is one of the most important calls you can make. Nearly 5,000 people are diagnosed with cancer every day in the US. Routine
cancer screenings are incredibly important for early detection,
especially for individuals with a family history of cancer.
The American Childhood Cancer Organization
St. Jude's Children's Hospital
Breast
Cancer Research Foundation
National Breast Cancer Foundation
Breastcancer.org
BrightPink.org.
Susan
G. Komen Foundation
Can Substance Abuse Lead to a Cancer Diagnosis?
