6/11/25

Celebrating Previvor Day on Father's Day Again

 Photo of a previvor shirt along with a photo of the artist and author with his baby daughter.

When my daughter was born in 1993, the announcement about the discovery of the tumor suppressor gene BRCA2 was a couple years away. And the coining of the word “previvor” was still several years off. Both of those future events would turn out to be profoundly significant.

In 2017, my daughter had genetic testing and learned she had inherited a mutation in one of her BRCA2 genes. A mutation that we now know to have been passed down in her mother’s family for centuries. That’s right, centuries. Knowledge of the mutation has allowed my daughter to take steps to significantly reduce her cancer risk. She is a previvor.

As part of our effort to raise hereditary cancer prevention awareness, I set out to design a previvor shirt for my daughter. But I soon realized that there wasn’t really a symbol for previvorship. So I sat down at my drawing table and sketched out about a dozen designs before settling on this one. I wanted the symbol to be unique and open for personal interpretation. But with no cancer ribbon in the design.

This coming Father’s Day, I will be celebrating my daughter’s previvorship and courage. And I will also be celebrating the science that has given my child a chance to live a full life cancer-free. A life her late mother did not get.

6/7/25

Hereditary Cancer Red Flags Checklist

 Hereditary Cancer Red Flags -Breast, colorectal, or uterine cancers under the age of 50. -Triple-negative breast cancer. (Breast cancer with no estrogen, progesterone, or HER2 receptors on the tumor.) -Male breast cancer diagnosed at any age. -Two separate cancer diagnoses in the same family member. Example: Both pancreatic and breast cancers in one individual. -Ovarian cancer at any age, especially in younger women. -A known BRCA, Lynch syndrome, or other pathogenic hereditary cancer-related mutation in the family. And that can be in a close genetic relative or one separated by many degrees. -Being of Ashkenazi Jewish descent with a history of cancer at any age. -Multiple family members with the same type of cancer or related cancers (like breast, ovarian, pancreatic, or prostate). -Pancreatic cancer at any age. -Metastatic prostate cancer. For more hereditary cancer resources go to www.genetionary.org   Please note: If you checked any of the boxes, please consult with your doctor and/or a certified genetic counselor. Be sure to take this checklist with you.

With at least 1 in 279 people at risk of hereditary cancer, this checklist should be a standard in every healthcare professional’s office. Download a PDF of it as well as other useful infographics about hereditary cancer at www.genetionary.org